Alzheimers Society, believe passionately that life doesn't end when dementia begins. They are here for anyone affected by dementia, and they do everything they can to keep people with dementia connected to their lives and the people who matter most. Please visit their page www.alzheimers.org.uk
The network team are supporting joint work across the three STP areas to enable co-production of STP dementia work programmes with people living with dementia and family caregivers. In December we conducted a mapping exercise to give a snapshot’ of current groups as at end of December 2017 – you can download the spreadsheet HERE
The Care and Support Jargon Buster is a plain English guide to the most commonly used social care words and phrases and what they mean. The definitions are plain English rather than legal, and were developed and tested by a steering group that included people who use services, carers, representatives from local authorities, information providers and key stakeholders from across the social care sector.
The Assessment of Cardiac Status Before Prescribing Acetyl Cholinesterase Inhibitors
Carers of people living with dementia talk about what helps them, what to do when things get tough, and where to find support. Visit www.dementiacarer.net for more information.
Digital technologies and dementia - training guide
This practical guide for group facilitators is now available to support training for people living with dementia/cognitive impairment in the use of digital technologies. The guide gives top tips including the importance of simple steps and the need for repetition, repetition, repetition, along with prepared staged worksheets for facilitators to use. The guide uses learning from the delivery of CAREGIVERSPRO-MMD research project, carried out at the University of Hull https://caregiversprommd-project.eu/.
DiADeM - Diagnosis of Advanced Dementia Mandate (for use in care home setting)
This link takes you to a new protocol to support diagnosis of dementia for people living with advanced dementia in a care home setting, without the need for referral to specialist/memory services.
We would like to thank Dr Graeme Finlayson, Bradford District Care NHS FT and Dr Subha Thiyagesh, South West Yorkshire Partnership NHS FT for sharing their protocols on which this tool is based.
Dementia 2015: Aiming Higher to Transform Lives
Two-thirds of people with dementia live in the community of these, one-third live alone in their own homes. Unpaid carers save the state £11 billion per year. While recognition of family carers has increased, in reality access to sufficient support and assessment of their own needs is still inadequate.
This reportprovides a snapshot of how well people are living with dementia, what support they are receiving and what barriers they face to living well. It makes practical recommendations to the new government on the steps that need to be taken to make quality of life better for people with dementia.
The Dementia Quality toolkit is a set of system searches (and supporting documentation) for general practice to help practices identify patients who have Read/CTv3 codes in their notes that may suggest dementia but who have NO corresponding dementia diagnosis.
This webinar, relevant to GP practices within Yorkshire & Humber, explains how the toolkit works and answers some frequently asked questions.
The Strategy aims to set out the future vision for Doncaster on how people with dementia, their carers and family networks are empowered and supported to live well. The Strategy recognises the vast amount of work that has taken place and uses this to help define the next steps in helping to achieve the Doncaster vision for dementia.
Don't Leave Me Now
'Don't Leave Me Now' is a play which explores the impact of dementia on two very different family units and was inspired by two real stories.
There are more than 300 written evaluations on the play which has been performed for NHS Trusts, Universities, Theatres, Community Centres, Arts Centres, Hospices and as an integral module within conferences looking at integrated care. There are 5 professional actors, the play is professionally directed and needs only 6 chairs and a room with good acoustics. There is always a discussion after the performance led by an expert in the field of dementia. The play lasts around 70 minutes and is both 'emotionally powerful' and 'thought provoking' but with lots of humour too. The play is endorsed by Dementia UK, The Alzheimers Society, Dementia Pathfinders, Cruse, The National Council for Palliative Care and Dementia Forward. The play reading can be booked by telephoning Brian Daniels 07740 372333. www.dontleavemenow.co.uk.
This factsheet was produced by the VISION 2020 Dementia and Sight Loss Interest Group to explain the importance of making the most of your sight when you’re living with dementia and what to expect at an eye examination.
A review of dementia and dementia provision in Hull - January 2018
Hull Clinical Commissioning Group (CCG) like many other CCGs and service providers are seeking ways to improve the quality and costs associated with providing dementia services. Current and predicted increases in demand, improved access and changes in workforce capacity and capability, have led Hull CCG’s to review their model of service provision. READ the FULL Report HERE
The Herbert Protocol is a national scheme being introduced which encourages carers to compile useful information which could be used in the event of a vulnerable person going missing. Carers, family members and friends can complete in advance, a form recording all vital details, such as medication required, mobile numbers, places previously located, a photograph etc. In the event of your family member or friend going missing, the form can be easily sent or handed to the police to reduce the time taken in gathering this information. More information can be found below:
Knowing Me! offers practical guidance on person centered care for those living with dementia, depression and delirium. The objectives of Knowing Me! are to raise awareness and understanding of the 3D’s, Dementia, Delirium and depression, drive improvements in the standards of care, and improve the outcomes that can be achieved for those affected by the 3D’s. Knowing Me! is not however a stand alone resource aimed at a particular staff group or a particular care environment but should be seen as a complimentary resource to raise the awareness and understanding of the 3Ds. Knowing Me! builds on the values and principles of person centered care and support to improve the quality of life and provides useful and practical ways improvements can be made to really make a difference.
The Life Story Network CIC is a fully registered Community Interest Company (CIC) in England and Wales.
The Life Story Network (LSN) is an organisation which works with a range of partners, and individuals, to promote the value of using life stories to improve the quality of life and wellbeing of people and communities, particularly those marginalised or made vulnerable through ill health or disability. The work of the LSN will considerably enhance the quality of care, and support, delivered to individuals and communities, through embedding a human-rights based approach.
Download the cost of drugs for treatment of Alzheimer’s disease. This was developed by Elly Wakeling MFRPSII MRPharmS IPMedicines Optimisation Pharmacist, and Dr Wendy Burn, Consultant Old Age Psychiatrist. This document has been updated as at end of July 2018.
Memory Services Referral Criteria
The National Dementia Strategy clearly describes objectives to achieve "good-quality early diagnosis and intervention for all”1. The Dementia Strategic Clinical Network in Yorkshire which met in March 2014 identified the variation in practice in regards to the minimal referral criteria for Memory Services. Follow this LINK to the referral criteria
Webinar: National Audit of Dementia Care in General Hospitals 2016-2017
Dr Oliver Corrado, Dr Beth Swanson and Chloe Hood from the National Audit team present the findings from the third National Audit of Dementia (NAD) which collected data between April and November 2016.
The National Audit of Dementia (care in general hospitals) measures the performance of general hospitals against criteria relating to care delivery which are known to impact upon people with dementia while in hospital. Criteria include policies and governance in the hospital that recognise and support the needs of people with dementia, elements of comprehensive assessment, involvement of carers, discharge planning, and identified changes to support needs during admission.
Neuroimaging Guidance in Dementia
This guidance has been written by the Yorkshire and Humber Strategic Clinical Network for Dementia working group which included old age psychiatrists, physicians, radiologists and a GP.
The purpose is to advise clinicians in primary and secondary care on the role of neuro-imaging in the assessment of dementia. It addresses the questions of when neuro-imaging should be undertaken and which scan should be requested. It also emphasises the importance of providing detailed information on request forms to obtain the best reports.
North Guidance on Dementia and Delirium Coding
This guidance document is prepared for use across the North region to provide a consistent way of coding dementia and delirium in GP practices. It was agreed by members of the north regional mental health, dementia and neurological conditions oversight group on Monday 28th July 2014 to use central guidance as the regional standard. Further changes were included following circulation to dementia clinical leads of north strategic clinical networks and the development of a CSU data quality tool to assist in data cleansing. The guidance continues to be refined as comments are received from users of this guidance. Most recent additions include guidance on the coding of delirium.
ONS Population Projection Changes on Dementia Diagnosis Rates (Impact on)
The national diagnosis rate for people with dementia as at end of April was 66.4% (down by 1.1% from March). For Yorkshire & Humber it was 69.8%. The decrease maybe due to the changeover to using 2016/17 ONS population estimates which increased estimated dementia prevalence. More information here
Rotherham CCG launched a new Carers Resilience Service in April. Crossroads Care and Alzheimer’s Society will be working in partnership with GP’s to provide each Practice with a named Link Worker for Carers of people with Dementia. This service will be available for those caring for someone undergoing assessment as well as having received a diagnosis. Initially, this was commissioned as a pilot project with 10 GP practices. The pilot is now being extended to provide the service to all GP practices across Rotherham with rollout expected to be completed by November 2015. Read more about it here.
Sleep matters is a time limited pilot which was set up to see whether volunteers in the community could administer non – pharmacological interventions, to improve the quality of sleep for people with dementia and their carers.The pilot was funded by the Integrated Commissioning Board for Health and Wellbeing Innovation Fund 2014/2015. Additional support and funding was provided by the Salford Healthy Communities Long Term Conditions team. Click here to read the report or contact Linda.Henry@uni.uk.net for more information.
Sustainable Transformation Plans (STP)
We’ve created a short animation to help describe Sustainability Transformation Plans (STPs) to you - NHS staff, NHS organisations and the wider public and patients. It clearly and simply explains what these local proposals for health and social care aim to do.
CCG’s and LA commissioners within the Yorkshire and Humber identified the need for a video resource to demonstrate the experience of the family carers for people with dementia. The Yorkshire and Humber Strategic Clinical Network funded the development of the video resource which is now available and free to download from www.dementiacarer.net.
The films have been developed by Arc Research and Consultancy Ltd and have been based on information gathered from carer interviews carried out as part of the development of dementiacarer.net which was a collaborative project funded by several CCG’s in South Yorkshire. Drama materials alongside clips of real carers talking about what helps them with difficult issues come out in the films. In addition there are session plans for people to download.
This leaflet, developed by Year of Care Partnerships, was designed to be used as part of the Year of Care review process. It helps people who are living with a long-term condition to think about how things are working for them at that point in time and what could really make a difference for them. It is intended to be completed with input from family and carers where appropriate. Please take your time to think through the questions and write down any thoughts and ideas you have. This leaflet has been included as an integral part of the QOF dementia annual review template to support patients and carers to actively contribute to the development of a care plan in conjunction with their clinician.